Part III of the Genetic Alliance Interactive Guide

Information About Rare Genetic Diseases

Exceptional Parent Resource Guide for Year 2000
A listing of organizations for specific disabilities.
Website: http://www.eparent.com/

Genetic Alliance
35 Wisconsin Circle, Suite 440
Chevy Chase, MD 20815-7015
Phone: 800-336-GENE
Email: info@geneticalliance.org
Website: http://www.geneticalliance.org/

National Institutes of Health (NIH) Office of Rare Diseases)
Includes a list of patient travel and lodging options as well as link to current genetic news, clinical resources and lay advocacy groups.
Website: http://rarediseases.info.nih.gov/

National Organization for Rare Disorders (NORD)
100 Rt. 37, PO Box 8923
New Fairfield, CT 06812-8923
Phone: 800-999-6673
Phone: 203-746-6518
Fax: 203-746-6481
Email: orphan@rarediseases.org
Website: http://www.rarediseases.org/

The University of Kansas
Hosts a comprehensive genetics resource site, which is updated regularly with clinical, research and educational links.
Website: http://www.kumc.edu/geneinfo.html

» Matching Resources

Privacy Policy - Disclaimer - Funding
Maintained by the Genetic Alliance.
The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at About the Interactive Guide to Building Advocacy Groups.

Send feedback about the Interactive Guide.

SEPTEMBER 2004: This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or send email. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!

AN INTERACTIVE GUIDE TO BUILDING ADVOCACY GROUPS
Part III
Part I Part II Part III » Advocacy Resources » Assistive Technology » Children’s Hopes and Dreams Foundations » Consumer Medical Information » Fundraising » General Resources » Information About Rare Genetic Diseases » Matching Resources » Publications » Resources for Nonprofits » Sibling Support » Travel	Information About Rare Genetic Diseases Exceptional Parent Resource Guide for Year 2000 A listing of organizations for specific disabilities. Website: http://www.eparent.com/ Genetic Alliance 35 Wisconsin Circle, Suite 440 Chevy Chase, MD 20815-7015 Phone: 800-336-GENE Email: info@geneticalliance.org Website: http://www.geneticalliance.org/ National Institutes of Health (NIH) Office of Rare Diseases) Includes a list of patient travel and lodging options as well as link to current genetic news, clinical resources and lay advocacy groups. Website: http://rarediseases.info.nih.gov/ National Organization for Rare Disorders (NORD) 100 Rt. 37, PO Box 8923 New Fairfield, CT 06812-8923 Phone: 800-999-6673 Phone: 203-746-6518 Fax: 203-746-6481 Email: orphan@rarediseases.org Website: http://www.rarediseases.org/ The University of Kansas Hosts a comprehensive genetics resource site, which is updated regularly with clinical, research and educational links. Website: http://www.kumc.edu/geneinfo.html » Matching Resources Privacy Policy - Disclaimer - Funding Maintained by the Genetic Alliance. The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at About the Interactive Guide to Building Advocacy Groups. Send feedback about the Interactive Guide. SEPTEMBER 2004: This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or send email. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!	« General Resources » Matching Resources Read or add comments (0 so far)