Part III of the Genetic Alliance Interactive Guide

Matching Resources

Association of Birth Defect Children
930 Woodcock Rd., Suite 225
Orlando, FL 32803
800-313-2232 (24 hour registry line)
Phone: 407-245-7035
Fax: 407-895-0824
Email: abdc@birthdefects.org
Website: http: http://www.birthdefects.org/

MUMS-Parent-to Parent Network
C/o Julie Gordon
150 Cusler Ct.
Green Bay, WI 54301-1243
Toll Free: 1-877-336-5333
Phone: 920-336-5333
Fax: 920-339-0995
Email: mums@netnet.net
Website: http:/www.netnet.net/mums/

National Organization for Rare Disorders (NORD)
100 Rt. 37, PO Box 8923
New Fairfield, CT 06812-8923
Phone: 800-999-6673
Phone: 203-746-6518
Fax: 203-746-6481
Email: orphan@rarediseases.org
Website: http://www.rarediseases.org/

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Maintained by the Genetic Alliance.
The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at About the Interactive Guide to Building Advocacy Groups.

Send feedback about the Interactive Guide.

SEPTEMBER 2004: This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or send email. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!

AN INTERACTIVE GUIDE TO BUILDING ADVOCACY GROUPS
Part III
Part I Part II Part III » Advocacy Resources » Assistive Technology » Children’s Hopes and Dreams Foundations » Consumer Medical Information » Fundraising » General Resources » Information About Rare Genetic Diseases » Matching Resources » Publications » Resources for Nonprofits » Sibling Support » Travel	Matching Resources Association of Birth Defect Children 930 Woodcock Rd., Suite 225 Orlando, FL 32803 800-313-2232 (24 hour registry line) Phone: 407-245-7035 Fax: 407-895-0824 Email: abdc@birthdefects.org Website: http: http://www.birthdefects.org/ MUMS-Parent-to Parent Network C/o Julie Gordon 150 Cusler Ct. Green Bay, WI 54301-1243 Toll Free: 1-877-336-5333 Phone: 920-336-5333 Fax: 920-339-0995 Email: mums@netnet.net Website: http:/www.netnet.net/mums/ National Organization for Rare Disorders (NORD) 100 Rt. 37, PO Box 8923 New Fairfield, CT 06812-8923 Phone: 800-999-6673 Phone: 203-746-6518 Fax: 203-746-6481 Email: orphan@rarediseases.org Website: http://www.rarediseases.org/ » Publications Privacy Policy - Disclaimer - Funding Maintained by the Genetic Alliance. The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at About the Interactive Guide to Building Advocacy Groups. Send feedback about the Interactive Guide. SEPTEMBER 2004: This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or send email. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!	« Information About Rare Genetic Diseases » Publications Read or add comments (0 so far)