Part III of the Genetic Alliance Interactive Guide

General Resources

CFC Family Network, Inc.
183 Brown Road
Vestal, NY 13850 USA
Phone: 607-772-9666 Evenings and weekends
Email: cliffordiv@juno.com
Website: http://www.cfcsyndrome.org/

The ARC of the U.S.
provides services for children and adults with developmental disabilities
Phone: 800-433-5255
Email: thearc@metronet.com
Website: http://www.TheArc.org/

Council for Exceptional Children
Searchable database on children with special needs including publications and discussion forum.
Website: http://www.cec.sped.org/

Exceptional Parent Magazine Website
offers information for parents and links to other websites.
Website: http://www.eparent.com/

The Family Resource Center
offers sources of information and networking for parents and professionals.
Website: http://www.php.com/

Family Village
a global village that integrates information, resources, and communication opportunities for people with disabilities, their families and professionals.
Website: http://www.familyvillage.wisc.edu/

Family Voices
a clearinghouse for information and education about ways to assure and improve healthcare for children with disabilities and chronic conditions.
National Family Voices Office
PO Box 769
Algodones, NM 87001
Phone: 888-835-5669
Fax: 505-867-2368
Email: idshealth@familyvoices.org
Website: http://www.familyvoices.org/

Information Resources for Special Children
Website created by a parent of a child with multiple disabilities. Offers links to disability sites.
Website: http://www.irsc.org/

National Fathers’ Network
For fathers of children with special needs.
Website: http://fathersnetwork.org/

NPND: National Parent Network on Disabilities
Email: npnd@c.s.net
Website: http://www.npnd.org/

National Information Center for Children and Youth with Disabilities (NICHCY)
Funded by the Department of Education, a national information and referral center.
PO Box 1492
Washington, DC 20013-1492
Phone: 800-695-0285
Fax: 202-884-8441
Email: nichcy@aed.org
Website: http://www.nichcy.org/

Parent Soup
General information on parenting from iVillage.
Website: http://www.parentsoup.com/

Parenting Special Needs
Online newsletter on a variety of topics
Website: http://specialchildren.miningco.com/

» Information About Rare Genetic Diseases

Privacy Policy - Disclaimer - Funding
Maintained by the Genetic Alliance.
The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at About the Interactive Guide to Building Advocacy Groups.

Send feedback about the Interactive Guide.

SEPTEMBER 2004: This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or send email. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!

AN INTERACTIVE GUIDE TO BUILDING ADVOCACY GROUPS
Part III
Part I Part II Part III » Advocacy Resources » Assistive Technology » Children’s Hopes and Dreams Foundations » Consumer Medical Information » Fundraising » General Resources » Information About Rare Genetic Diseases » Matching Resources » Publications » Resources for Nonprofits » Sibling Support » Travel	General Resources CFC Family Network, Inc. 183 Brown Road Vestal, NY 13850 USA Phone: 607-772-9666 Evenings and weekends Email: cliffordiv@juno.com Website: http://www.cfcsyndrome.org/ The ARC of the U.S. provides services for children and adults with developmental disabilities Phone: 800-433-5255 Email: thearc@metronet.com Website: http://www.TheArc.org/ Council for Exceptional Children Searchable database on children with special needs including publications and discussion forum. Website: http://www.cec.sped.org/ Exceptional Parent Magazine Website offers information for parents and links to other websites. Website: http://www.eparent.com/ The Family Resource Center offers sources of information and networking for parents and professionals. Website: http://www.php.com/ Family Village a global village that integrates information, resources, and communication opportunities for people with disabilities, their families and professionals. Website: http://www.familyvillage.wisc.edu/ Family Voices a clearinghouse for information and education about ways to assure and improve healthcare for children with disabilities and chronic conditions. National Family Voices Office PO Box 769 Algodones, NM 87001 Phone: 888-835-5669 Fax: 505-867-2368 Email: idshealth@familyvoices.org Website: http://www.familyvoices.org/ Information Resources for Special Children Website created by a parent of a child with multiple disabilities. Offers links to disability sites. Website: http://www.irsc.org/ National Fathers’ Network For fathers of children with special needs. Website: http://fathersnetwork.org/ NPND: National Parent Network on Disabilities Email: npnd@c.s.net Website: http://www.npnd.org/ National Information Center for Children and Youth with Disabilities (NICHCY) Funded by the Department of Education, a national information and referral center. PO Box 1492 Washington, DC 20013-1492 Phone: 800-695-0285 Fax: 202-884-8441 Email: nichcy@aed.org Website: http://www.nichcy.org/ Parent Soup General information on parenting from iVillage. Website: http://www.parentsoup.com/ Parenting Special Needs Online newsletter on a variety of topics Website: http://specialchildren.miningco.com/ » Information About Rare Genetic Diseases Privacy Policy - Disclaimer - Funding Maintained by the Genetic Alliance. The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at About the Interactive Guide to Building Advocacy Groups. Send feedback about the Interactive Guide. SEPTEMBER 2004: This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or send email. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!	« Fundraising » Information About Rare Genetic Diseases Read or add comments (0 so far)