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<div class="book">AN INTERACTIVE GUIDE TO BUILDING ADVOCACY GROUPS</div>
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<div class="part">Part II</div>
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<br />
<a href="/InteractiveGuide/PartI/">Part I</a><br />
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<a href="/InteractiveGuide/PartII/">Part II</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_assessment.html">Assessment</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_structure.html">Structure</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_resources.html">Resources</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_support.html">Support</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_education.html">Education</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_research.html">Research</a><br />
<a href="/InteractiveGuide/PartII/Pages/cat_advocacy.html">Advocacy</a><br />
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<a href="/InteractiveGuide/PartIII/">Part III</a>

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<h3>People and Roles</h3>

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<p>An organization is made up of people, and those people take different roles. For those of you who have been running a group for a while - especially if you've been doing it on your own - you know that one person can wear many different hats. Knowing what those hats are can sharpen your vision - your sense of what is possible for members and yourself. Let's take a look at some of the roles that support organizations and some of the pools you'll draw from.</p>

<p><b>Governing boards:</b> Boards are groups of people that meet periodically to review information about an organization and make recommendations. A board can be a very formal group, complying with requirements and codes to support an organization's nonprofit status, and you need to keep in mind some of those requirements as your group grows. Although it may be tempting to say "We're just a few parents trying to stay abreast of our kids' conditions," knowing a bit about how a governance board is constituted and run can save you time and simplify your operations as a group - especially if a conflict arises.</p>

<p><b>Advisors:</b> A governing board advises your group, of course, but your group may use other advisors as well, and even collect them into separate boards. The advisors we'll focus on will generally be scientific/medical advisors, or professional advisors. Organizing your approach to bringing in this kind of professional assistance will both make your use of those resources more efficient and signal to the professionals you approach that your organization is a going concern.</p>

<p><b>Staff:</b> Staff is a big bucket and includes all kind of roles for an organization, from answering phones to stuffing envelopes to developing educational materials to raising money. Staff may be paid or volunteer - we're focusing on roles here, and you don't have to take money to be a bookkeeper or a fundraising director or a volunteer coordinator.</p>

<p>You may be tempted to think solely in terms of membership plus a few professional advisors and maybe a bookkeeper, but you can draw from many different pools. You can think of your member pool creatively, too, as a way to think about reasonable efforts from those who do work for your organization.</p>

<p><b>Consultants:</b> Your group may have occasional or small-scale needs for paid work - the design and production work for a brochure, periodic money management or tax preparation, event planning. These are opportunities to use freelance help, which may be available on a volunteer basis, for some kind of trade, or paid.</p>

<p><b>Volunteers:</b> The initial efforts for an advocacy group are contributed by volunteers, and many organizations are entirely volunteer - or nearly so - throughout their lives. One advantage of volunteers is that they're free! Unfortunately, people often feel free to drop out of work for which they are not paid. Even when no money changes hands, the connection, recognition, and support that is required to recruit and retain good volunteers is important to appreciate - both to keep your volunteers happy and to do a good job of ensuring that volunteer coordination doesn't turn into an onerous chore.</p>

<p><b>Interns and students:</b> You may need short-term help to prepare for an event, to staff it, or to complete a big mailing. Depending on the work and the timeframe, interns and students (from middle school on up) can be a great way to get work done. Students with assignments such as interviews in the work world or volunteer requirements, whether for school or for extracurricular activities, may be just the helping hands you need to get out a big annual mailing or to help keep an event running smoothly by staffing a table or helping to direct traffic. Interns are a good choice when a fairly straightforward project with a defined time period needs someone to focus on it, who can do so with minimal direction. </p>

<p>You might luck out and find an intern with desktop publishing skills to design a holiday greeting, or a nutrition graduate student who can help develop a cooking activity for a group of kids with a metabolic disorder. However, interns and students are more likely to be looking for some training as well as some experience. Advantages of students and interns include the cost, but remember that they usually have a motivation beyond your group in particular, so be aware of the context of their participation, whether that means helping them verify their assistance or taking time to teach them tasks or be available for assignments they are completing.</p>

<p><b>Retirees:</b> Members, who may be working or deeply involved in childcare, and students, who have classes to attend and studies to complete, may not have the right blocks of time available. Retirees can be a wonderful resource to your group, and they may bring a tremendous variety and depth of experience. Some groups, such as <a href="http://www.score.org/" target="_blank">SCORE</a>, have programs that match people with business experience in specific areas with people who need mentorship in those areas. All the same notes about working with any volunteer apply - be clear about the kind of support you need and the way your organization wishes to accomplish the goals involved, and respectful of the volunteer's contribution, even if you need to channel their energy.</p>
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<a href="http://geneticalliance.theanteroom.com/InteractiveGuide/PartII/Pages/000069.html">&raquo; Harnessing the Resources That Are Hard to Measure</a>
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The Interactive Guide to Advocacy Groups was written by Sharon Fontaine Terry and Caitlin Burke, with contributions from Genetic Alliance members. The Interactive Guide to Building Advocacy Groups is made available under a Creative Commons license. You may make and share copies of this work for noncommercial purposes without modifications and with this acknowledgement included in full. More information is available at <a href="/InteractiveGuide/About/">About the Interactive Guide to Building Advocacy Groups</a>. </p>

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<p class="nav"><b>SEPTEMBER 2004:</b> This is a preliminary installation of the Interactive Guide to Advocacy Groups. We need your feedback. Make comments on specific pages (you may see error messages, but comments should still post), or <a href="mailto:caitlin@marmoset.com">send email</a>. Is something missing? Can we make it easier to navigate? This Guide will change regularly over the next few months as we incorporate changes and fine tune the site. Thank you!</p>

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